Spine Registries

Scoliosis Research Society Morbidity and Mortality Database

Complication reporting collected since 1965 and mandatory for all SRS members since 1968; records deaths, neurological deficit, acute infection (from 2012) and unplanned return to theatre (from 2017), with 40,000–50,000 cases submitted per year in 2013–2020.

Run by

Scoliosis Research Society (SRS)

Take part

Submission is a membership requirement for SRS members.

Data access

Not stated publicly; analyses are run by SRS committees.

Reports

No public annual report; periodic analyses are published in journals (e.g. Spine Deformity 2022).

Registry website →Source checked

Spine Tango (EUROSPINE)

International registry since 2002 for surgical and non-surgical spine care, recording treatments, an implant library and multilingual outcome instruments; also supports nested studies and an IONM form.

Run by

EUROSPINE

Take part

Free for EUROSPINE members; non-members can request a demo and register as users.

Data access

Researchers can use anonymised pooled data and run investigator-led multicentre nested studies via EUROSPINE.

Reports

Annual reports since 2006 are listed in the Spine Tango resources/publications section.

Latest

Spine Tango Annual Report 2025 (covers 2025 data)

Annual reports →

Registry website →Source checked

Pediatric Spine Study Group (PSSG) Registry

Multicentre registry tracking children with early-onset scoliosis (EOS), including radiographs; PSF reported over 12,000 patients from 82 institutions in 12 countries by early 2024, with expansion into SMA, juvenile idiopathic scoliosis and long-term quality of life.

Run by

Pediatric Spine Foundation (PSF)

Take part

Surgeons/institutions join through PSSG membership administered by the Pediatric Spine Foundation (candidate members are admitted each year).

Data access

Not stated publicly; projects run through PSSG Research Interest Groups – contact info@pediatricspine.org.

Reports

PSF/PSSG annual reports are posted on the PSF website (About Us – reports).

Latest

PSF Annual Report 2025 (file posted March 2026); last PSSG-specific annual report found: 2023

Annual reports →

Registry website →Source checked

Harms Study Group prospective registries

Prospective multicentre database registries of surgically treated adolescent idiopathic scoliosis (patients under 26 undergoing fusion), with radiographic outcomes and patient-reported quality of life; related registries cover cerebral palsy scoliosis, Scheuermann kyphosis and non-fusion correction.

Run by

Harms Study Group (multicentre surgeon study group named after co-founder Jürgen Harms)

Take part

Participation is by invitation as a member centre of the study group.

Data access

Not stated publicly; data are used by member investigators.

Reports

No public annual report found; results appear in peer-reviewed publications.

Registry website →Source checked

Australian Spine Registry

Clinical quality registry for elective adult spine surgery, piloted from 2016 with data collection from January 2018; collects EQ-5D-3L, ODI and NDI. Still described as a pilot in the national registry list.

Run by

Spine Society of Australia with Monash University

Take part

Hospitals and surgeons participate in the pilot; contact the registry team at Monash.

Data access

Not stated.

Reports

Annual reports have been posted on spineregistry.org.au (2018 and 2019 reports identified).

Latest

2019 annual report (published August 2020); nothing newer found

Annual reports →

Registry website →Source checked

Canadian Spine Outcomes and Research Network

Prospective national network enrolling spine surgery patients since 2015, collecting PROMs and adverse events; one 2026 analysis drew on 6,242 lumbar degenerative patients from about 20 Canadian sites.

Run by

Canadian Spine Society

Take part

Canadian spine centres join via the Canadian Spine Society network.

Data access

Not stated publicly; analyses are led by network investigators.

Reports

No public annual report found; outputs appear as papers and Canadian Spine Society abstracts.

Registry website →Source checked

Rick Hansen Spinal Cord Injury Registry

Prospective observational registry of traumatic (and increasingly non-traumatic) SCI since 2004, using ISNCSCI-aligned standard data; nearly 16,000 participants from 30 Canadian centres, with partners in New Zealand, China and Israel.

Run by

Praxis Spinal Cord Institute

Take part

Canadian trauma and rehabilitation centres join through Praxis.

Data access

Via Praxis Data Services.

Reports

Reports are downloadable from Praxis (e.g. 2023 RHSCIR Report).

Latest

2023 RHSCIR Report

Registry website →Source checked

DaneSpine – Danish national spine surgery register

Since 2009, records surgeon-reported diagnosis, procedure, implants and complications plus PROMs (VAS, EQ-5D-3L, SF-36, ODI, NDI, SRS-22) before surgery and at 1, 2, 5 and 10 years. Holds over 125,000 operations (8,946 in 2025) from all public and private Danish spine units.

Run by

Danish Society of Spine Surgery (Dansk Rygkirurgisk Selskab, DRKS)

Take part

All Danish public and private spine surgery units report to it; reporting (indberetning) is arranged via the DRKS website.

Data access

Not stated in the report; the DRKS website has a 'data use' (Data anvendelse) section, and data ownership lies with the operating department.

Reports

Annual reports are posted on the DRKS website.

Latest

Annual report 2025 (published May 2026)

Annual reports →

Registry website →Source checked

European Multicenter Study about Spinal Cord Injury

Clinical SCI network collecting standardised serial assessments (ISNCSCI, neurophysiology, functional tests, SCIM, neuro-urology, GRASSP, pain); also the recruitment base for trials such as SPROUT.

Run by

EMSCI network (coordinated from Balgrist, Zurich, and Heidelberg University Hospital)

Take part

Centres join as network members; contact via the EMSCI site.

Data access

Not described publicly; contact EMSCI.

Reports

Reference reports (normative ISNCSCI/SCIM/walking values) on the EMSCI database pages.

Latest

not applicable (no annual report)

Annual reports →

Registry website →Source checked

FinSpine – Finnish Spine Register

In use since 2016, it combines procedure, implant and complication data with PROMs/PREMs before surgery and at 3 months and 1, 2, 5 and 10 years. In 2022 it held 7,553 operations (about 86% of national spine surgery) from 19 of 23 public hospitals plus private units.

Run by

Finnish Institute for Health and Welfare (THL), with a steering group of Finnish spine surgeons

Take part

Hospitals join through THL and the register software (BCBMedical); private hospitals are being added.

Data access

Researchers apply through Findata (the Finnish Social and Health Data Permit Authority).

Reports

THL publishes register outcome reports on its website; no regular annual report was identified.

Registry website →Source checked

DWG-Register (German Spine Registry)

Collects patient data, diagnosis, procedures, surgeon-rated outcome and PROMs, supporting hospital benchmarking and DWG spine-centre certification. The previous register closed on 30 June 2024 and a new register went live in mid-2024.

Run by

Deutsche Wirbelsäulengesellschaft (German Spine Society); new platform hosted by Mint Medical

Take part

DWG member clinics onboard via Mint Medical; local ethics notification usually relies on the existing approvals.

Data access

Not stated publicly; governed by the DWG register rules of procedure.

Reports

Hospital benchmark reports go to participating clinics; DWG register commission reports are posted on dwg.org.

Registry website →Source checked

RIDIS – Italian Spine Registry

IN DEVELOPMENT: a technical committee (since March 2020) has drafted data items and a spinal implant taxonomy to supplement hospital discharge records; data collection had not started.

Run by

Istituto Superiore di Sanità (ISS), within the RIPI implantable-prostheses registry

Take part

Not yet open.

Data access

Not applicable.

Reports

None yet.

Latest

not applicable (not yet operating)

Registry website →Source checked

Japanese Orthopaedic Association National Registry / JSSR database

National surgical case registry launched in April 2020 for JOA members across orthopaedic procedures, with spine data shared with the JSSR database; a 2025 analysis cited 158,407 registered patients.

Run by

Japanese Orthopaedic Association with the Japanese Society for Spine Surgery and Related Research

Take part

JOA member surgeons enter cases as part of specialist accreditation.

Data access

Not stated publicly; studies run through JSSR/JOA committees.

Reports

No public annual report found; analyses published in Spine Surgery and Related Research.

Registry website →Source checked

Japanese Spinal Instrumentation Society Database

Since February 2018, records instrumented spine surgery (levels, implants, revisions, 14-day complications), linked to JOANR since October 2020; over 90 facilities had joined by 2021.

Run by

Japanese Spinal Instrumentation Society (JSIS)

Take part

JSIS member facilities join with local ethics approval.

Data access

Not stated.

Reports

No annual report found.

Registry website →Source checked

European Spine Study Group database

Prospective multicentre database of adult spinal deformity patients, founded in 2010, combining clinical examination, PROMs, imaging and surgical data; over 2,000 patients.

Run by

European Spine Study Group (five member clinics, incl. Schulthess Klinik)

Take part

Closed group of member clinics; no open enrolment described.

Data access

Not stated.

Reports

No annual report; outputs appear as publications.

Registry website →Source checked

Dutch Spine Surgery Registry

Collected anonymised outcomes of back and neck surgery from late 2013. DISCONTINUED: participating hospitals were notified of its closure on 21 December 2020.

Run by

Dutch Spine Society with DICA

Take part

Not possible – the registry has stopped.

Data access

Not applicable.

Reports

Case-mix-adjusted results were previously published annually via DICA.

Latest

not applicable (registry closed 2020)

Registry website →Source checked

NORspine – National Quality Register for Spine Surgery

Records surgery for degenerative lumbar and cervical conditions plus (since 2023) deformity surgery for idiopathic scoliosis, with patient-reported outcomes at 3 and 12 months. All Norwegian units performing these operations report to it (100% unit coverage, >80% case capture).

Run by

University Hospital of North Norway (UNN), Tromsø

Take part

All Norwegian spine surgery units already participate; new units contact the register secretariat at UNN.

Data access

Not stated in the annual report; Norwegian quality registers handle research data requests through the registry secretariat.

Reports

Annual reports are published open access in the UiT series Septentrio Reports.

Latest

Annual report 2024 (published 15 September 2025)

Registry website →Source checked

Swespine – Swedish Spine Register

National quality register for spine surgery at Swedish orthopaedic and neurosurgical units, with patient-reported follow-up (about 70% one-year follow-up). The site reports roughly 227,000 index operations from 47 connected clinics, with about 10,000 added per year.

Run by

Swedish Spine Surgery Society (Svensk Ryggkirurgisk Förening)

Take part

Clinics register through the Swespine platform; the joining procedure is not described on the public site, so contact the registry.

Data access

Not stated on the public site; contact the registry office.

Reports

Annual reports (Årsrapporter, some with English versions) are posted on the Swespine website, back to 2002.

Latest

Rapport 2025 covering 2024 operations (file dated November 2025)

Annual reports →

Registry website →Source checked

SIRIS Spine (Swiss implant registry – spine)

Mandatory Swiss register of implant-associated lumbar spine operations (fusions, interbody approaches, disc replacement, vertebro-/kyphoplasty), sharing the Spine Tango platform and implant catalogue. The 2026 report covers 10,426 operations registered in 2025.

Run by

SIRIS Foundation; operations and clinical support by EUROSPINE

Take part

Mandatory for hospitals in the ANQ national quality contract performing registrable operations; data entered at siris-spine.com.

Data access

Not described publicly; research requests go to siris-spine@eurospine.org.

Reports

Quarterly benchmarking reports go to hospitals; a descriptive annual report is published on the SIRIS Downloads page and ANQ results site.

Latest

Descriptive annual report 2026 covering 2025 data (August 2026)

Annual reports →

Registry website →Source checked

Swiss Spinal Cord Injury Cohort Study

Long-term cohort study of people with SCI in Switzerland covering health, care and social participation; part of the international InSCI survey.

Run by

Swiss Paraplegic Research (Nottwil) with partners

Take part

Not stated on the site; participants are people with SCI living in Switzerland.

Data access

Not described publicly; contact contact@swisci.ch.

Reports

Summary study results and articles on the SwiSCI website.

Registry website →Source checked

British Spine Registry

Since May 2012, collects clinical and patient-reported outcome data on spinal operations through a largely automated electronic system.

Run by

British Association of Spine Surgeons (BASS); platform by Amplitude Clinical Outcomes

Take part

Surgeons sign up online via the BSR surgeon sign-up page.

Data access

Researchers complete the BSR Data Request Form available on the Downloads page.

Reports

No public annual report found; the site has Downloads and Quality Accounts pages.

Annual reports →

Registry website →Source checked

American Spine Registry

National spine surgery registry with lumbar and cervical modules plus PROMs, built on the QOD Spine registry and launched in January 2020.

Run by

AAOS and AANS (joint)

Take part

Sites enrol via the 'How to Enroll' page.

Data access

Via the registry's Data Reuse Opportunities page.

Reports

AAOS publishes ASR annual reports (first edition in 2025) via its communications site; the publications page lists research outputs.

Latest

ASR 2025 Annual Report (first edition; reviews over 342,800 procedures from 2015–2023; publication date not stated)

Annual reports →

Registry website →Source checked

Quality Outcomes Database – Spine (NeuroPoint Alliance)

Launched in 2012, the QOD Spine registry collected spine surgery outcomes and PROMs; by end-2019 it had over 150,000 patients from 98 active centres. It became the foundation of the American Spine Registry, with QOD sites converted to ASR from 2020.

Run by

NeuroPoint Alliance (AANS)

Take part

New spine sites now join the American Spine Registry rather than QOD Spine.

Data access

Historical QOD data access via NeuroPoint Alliance; not stated publicly.

Reports

Updates appear in AANS annual reports.

Registry website →Source checked

National Spinal Cord Injury Statistical Center – SCI Model Systems Database

Central database for the US Spinal Cord Injury Model Systems centres (NIDILRR grant 90SIMS0016).

Run by

University of Alabama at Birmingham, funded by NIDILRR

Take part

Only funded SCI Model Systems centres contribute.

Data access

Not confirmed.

Reports

Facts and figures/statistical reports are published on the NSCISC public site.

Registry website →Source checked

Michigan Spine Surgery Improvement Collaborative

Regional quality-improvement registry of spine surgery outcomes and practice (e.g. infection, urinary retention, early ambulation, discharge opioids); 30 sites and over 10,000 patient outcomes.

Run by

Coordinating centre at Henry Ford Health; funded by Blue Cross Blue Shield of Michigan / BCN

Take part

Michigan hospitals and surgery centres request access via the MSSIC website.

Data access

Not stated publicly.

Reports

Publications and impact summaries on the MSSIC site.

Annual reports →

Registry website →Source checked

International Spine Study Group Foundation databases

Since 2007, runs multicentre prospective studies of adult (and cervical) spinal deformity; the site reports over 5,400 patients from 30+ sites.

Run by

International Spine Study Group Foundation (ISSGF)

Take part

Membership-based study group; contact the foundation.

Data access

Not stated; contact via the ISSGF contact page.

Reports

No annual report; results published in journals.

Registry website →Source checked